Wednesday, August 18, 2010
Home sweet home, ahhhhhh. I drove myself home yesterday, Kyle did come pick me up but I drove back. You see the window in the Mita won't roll down on the passenger side and I had to much luggage to take home in order to put the top down. I have this need to have a little air flow even if it is just a crack in the window, I feel like I am suffocating if I don't have that air flow, weird I know.
We got home at about 7:30pm and the In-Home nurse was suppose to come at 8pm, this is my first time doing home IV's ever so, I don't know what I am doing! Eight o'clock came, eight thirty came and so forth. I finally called my sister and asked her to come over and show me what to do but I had a different Infusion company and they used a pump she had never used! I was stressing out because it is all about time with this antibiotic and I didn't want to miss a dose. Finally the nurse called back and showed up at around 10pm! Then we sat there for and hour while she was on the phone with a pharmacist trying to reset the pump's rate time, ahhhhh! The dose finally began to drip at 11pm!
I still have to take benhadryl 50mg an hour before infusion, in the hospital I new it made me sleepy but I didn't realize how spacey it made me until I came home and tried to do normal everyday tasks. I lost my keys three times within a half an hour! Oh my, it is frustrating. I feel like I am acting normal but when I do something like that I can't help but think, "how stupid of me!"
I am going to try and be more active even while I am still on the IV antibiotics. My PFTs were at 54% when I was admitted but five days later they jumped up 18% to 72%! My goal for the rest of the course is to bring my PFTs up between 80% to 85%, so I have at least 8 more % to go, at least!! I am really hope I can do this, it will not only help me physically but mentally and emotionally as I fight this horrible disease!
Please pray for me that I would be able to fight for this goal and that God would give me strength and endurance to walk this road He put ahead of me. We all have our daily trials, this is just the one God choice for me, the key is that He gets the glory even if we fall or stand up, all Glory and power to the name of Jesus Christ our Lord!